Our Story
In May 2005 Darren wrote up this account of little Charlotte’s birth and the months following— the story of Charlotte and themselves:
It all happened on the 18th of October 2003. It was one of those days when I just wanted to get out of college, then suddenly my phone kept ringing. I was at that time in class doing silver service, I was not supposed to have had my phone on, I said to my friend what shall I do he said just answer it, so I did and it was Debbie. She said that the midwife had been round and told her that she needs to go to hospital to get checked over so I rushed straight back, up to that stage we was told that the pregnancy was all ok, when we got there they monitored Debbie over the weekend then, they told us that they needed to get the baby out and the chances of survival was very minimum, so then Debbie had to go to theatre and I was there also. This was very scary I could not stop shaking Debbie was looking at me and holding my hand saying is everything ok, I just said yes as I didn’t want to worry her. At around 7.30 pm on the 21st of October 2003 Charlotte was born.
I could not believe my eyes she was so tiny, only weighing 458 grams what is less than a bag of sugar, but she was alive I heard her little cry I just cried then they had to take her away into the intensive care department . We didn’t even think she would make it one night. I could not sleep, I had to rush back to get Daniel who is our oldest son he was around 10 months at that time. The next day me and Debbie went to see Charlotte together for the first time, it was scary we just both looked at each other and cried we was told that Charlottes survival was less than 50% but we just held each others hands and took a deep breath, and I prayed please God let our little girl live and I believe with my heart that is what God is doing. At that time there were loads of different noises, bleeping sounds and Charlotte had loads of wires attached to her all over, she was so tiny and fragile her skin was even fragile you could see all her veins. I thought we are not giving in and I believe maybe in her own way she thought the same. We could not even hold her at that time; all we could do was containment holding what is one hand on her head and one on her stomach they call it bonding. Because Charlotte was so premature and so tiny she had problems with her lungs, kidneys, and her heart as she was born at 26 weeks all the main organs was not developed properly yet, and also this was even more fatal as Charlotte was the growth of a 19 week old baby. The reason for the early delivery was placental abruption.
I could not understand why this was not picked up at Debbie’s 12 week scan, but I suppose that is another story. Anyway we both took it day by day with Charlotte has we did not know what to expect the next day, you didn’t even know if she would make it a week, but a week became two weeks then they told us that Charlotte had to go to Southampton to have a operation. Charlotte was so tiny and she was going to have two clips on her heart because she had a heart murmur, what is also called a duct , this was very scary as you didn’t even know if she would get through the operation but we got to Southampton and then they told us that the operation could go either way it was 50 /50 so we was horrified to hear that, so we decided to go for a walk while the operation was taking place, I was so scared as our little Charlotte could go and I we was horrified but when we returned the doctor came in with good news the operation was a success I just started to cry as I was so happy. Anyway when she came back to Portsmouth hospital we just took it day by day again doing our containment holding and just praying please God let her live. Three months went past and then it came to the time where we could hold Charlotte. It was so nice to actually hold her for the first time we felt so happy.
In Charlottes first three months she had infections and she could have died at any time as she was so fragile, but she got over those I think she even got to the stage in the first three months to be ventilated but Charlotte is a fighter and she got over all that, so at that time Charlotte was three months and she could come out of her incubator she was on the cpap at the stage and this went on for a while then she was transferred next door what was special care what is the next stage from intensive care so Charlotte was in a step in the right direction she was even feeding from a bottle then as well what I believe was in January 2004, and then she was transferred to a cot, Charlotte was diagnosed as her sight and hearing was ok and her brain was ok as well at that stage, it was just her lungs, kidneys and heart we had to worry about. Anyway Charlotte seemed to be making progress, and she was growing, then one day she had a set back. This is the one before July, but she recovered really well. I was there at that time– it was very scary but, our Charlotte is a fighter, and after that she made tremendous progress she was even on the nasal prongs. It was now at the stage where we was looking forward to her coming home, she got to the stage in June 2004 where she was in 0.4 on the nasal prongs. We were told at that time she would be home soon if she carries on improving, then the hospital moved her from the baby unit to the children’s ward, and that is when all this big set back happened.
I noticed over days her oxygen crept up, and up, and then I was told one day that she had a infection what was a blood infection, and then they had to reventilate Charlotte. Up to the stage where she was transferred she was ready to come home and she was in a lot less oxygen what she is in now, we have been told by the hospital if Charlotte gets to 30% oxygen she can come home, but she was in less oxygen than 30% when she was transferred to the children’s ward so why didn’t they let her go home then, as she would not have caught the blood infection what caused her set back?
Anyway I get a call saying please get to the hospital as soon as possible as Charlotte has to go on a ventilator due to a lung collapse. Then she had to be transferred to Southampton yet again, Charlotte was there for around five days and we was told that the infection had got into the brain what had caused her brain activity to be slower than when she was born, then when we got back to Portsmouth with her we was told they would not reventilate her again as it wouldn’t be in her best interests. We was told by the doctors that she was basically brain dead, in pain and had no quality of life– could not see, hear, and goes on and on, so we decided to take it to the high court.
Since September we have noticed Charlotte getting better and now she reaches out for things, she smiles she knows who her parents are her oxygen as come down and there great signs that she can see, hear and does have a quality of life. That is why we will battle on, as we believe the hospital maybe have given up on her but we have not. That is our story up to now.
We are with you and sending love and positive feelings for CHARLOTTE AND FOR HER LOVING PARENTS
Claudine and Remy in France
Comment by GOZE — 5 November, 2006 @ 11:36 am
The LORD GOD is on your side and holding you and your daughter. He is mighty and just and loves life. I pray that the love for your sweet Charlotte continues to grow and be known. May the blood of Jesus heal your daughter and give you strength.
Comment by janet — 6 November, 2006 @ 2:52 pm
God bless you.
Comment by Artur — 10 November, 2006 @ 5:11 am
Thy kingdom come, Thy will be done on earth as it it is in heaven in Charlotte’s life. May an open heaven surround you with all miraculous signs and wonders as Charlotte is healed in Jesus’ name.
Comment by Luanne — 30 November, 2006 @ 6:37 pm
get well soon Charlotte ur dad loves ya
Comment by rachel — 4 December, 2006 @ 9:46 pm
“Casting all your cares on Him, for He cares for you.” - 1 Peter 5:7
Comment by Thujee — 20 December, 2006 @ 5:00 pm
Dear Darren,
May love and light guide you and Charlotte through life, wherever you shall be love will always bond you together.
Much love to you all always x
Comment by Tracey — 8 January, 2007 @ 12:10 pm
I pray for you. If you can, please mail for mail to your e-mail adress. Im in Namibia, just want to encourage you, the Lord our God knows………………………
my e-mail: frits@mweb.com.na
LOVE
EILEEN
Comment by Eileen van Dyk — 18 January, 2007 @ 7:02 pm
Wow how amazing that you fought so hard for your daughter and you were right all along. I had a baby boy at 27 weeks and he was very poorly, I nearly lost him several times, it’s horrible to see your child go through that and sometimes the docs just don’t care enough. My son is 11 years old now and severely disabled but I am so proud of him for fighting on, all my love to Charlotte, may she fight on and may God protect her always as he has done from her conception, God bless you both as parents for giving her a fighting chance, I pray you all are blessed as a family and that Charlotte continues to grow in strength of spirit and body, may God bring her healing to live a full and happy life. Despite my son’s disability and all the problems he faces, God has given him a full and happy life. All the best guys, well done xxx
Comment by sarah nicholls — 23 February, 2007 @ 11:45 am
im praying for you and your gorgeous daughter charlotte she has fought so hard and god will help you by answering your prayers i have followed the story of charlotte and your battle to keep her alive and you are one remarkable family god bless you all
Comment by sally wells — 25 February, 2007 @ 3:29 pm
Hey i just want to say congratulations you have a beautiful daughter..I stumbled accross your website trying to find the meaning of my daughter name also called charlotte. Her story is similar but not quite the sane… I found out i was pregnant when i was 6months charlotte wasnt a active baby and i was going though a bad time so i just simply never thought..anyway charlotte was born 2 weeks later 10weeks early..weve had our ups and downs and she now 6months old ive recently been told charlotte may not ever walk and needs surgery to put her feet and legs correct. Reading your story seems to somehow helped me cope with what may happen in the future. It seems we havnt been home much recently and i never even began to think about anybody else seeing that you found the strength for your amazing daughter has made me feel i can tackle the world! you are both an inspiration
Comment by .amanda — 18 June, 2007 @ 9:34 pm
I have tried many times, and many avenues to get this prayer across. (Last forwarded Oct. of 04′) To no avail. Praise God for this forum. Here is the prayer I wish for Charlotte’s parents, and all who see to be of one accord upon it’s recital;
{ Father today we step boldly into your throne room
and pray in the name of The Lord Christ Jesus, and of
the Holy Spirit. Lord your Word tells us that you are
a help in our time of need. We know that it is your
will that none would suffer. Father we thank you for
the miraculous healing of little baby Charlotte. Lord
you said yourself in MATTHEW 18:19 That if two of you
shall agree on earth as touching any thing that they
shall ask, it shall be done for them of my Father
which is in heaven. So father today more than two
agree that you will heal your little baby Charlotte
with a profound miracle, and swiftly so, in Jesus
name. In all things not our will but the will of the
Father be done, that It may glorify The Lord AMEN.
Tell them to pray this and lay hands on her as
they do so. This prayer comes with power from on high.
do not disregard it. I urge everyone who reads this
not to take it lightly, and to pray it also and to
believe. }
Comment by Montgomery Reyna — 1 July, 2007 @ 6:40 am
you are fighting a rather hard battle….and im praying for your family and for baby Charlotte. Have no fear in you because she is a strong fighter and she will keep on fighting…God’s on your side too…
May God bless you and your family,
Your always in my prayers….
Comment by kylie — 22 July, 2007 @ 3:13 pm
hii
i have read the your story and it has truley touched my heart..
your baby girl is beautiful and has all the right to live.. i hoppe that she makes a full recovery and shows the hospital true will power out of such a beautiful little girl..
i wish you and your husand all the best in your fight to justice.
Comment by stephanie — 2 August, 2007 @ 6:16 am
I just want to say Darren and Debbie God is with you and has chosen you to be witness to his miraculous and unfailing love and mercy. Charlotte is a beautiful gift from God to you and the world. I was in a similar situation like you for almost two years suffering alongwith my baby running from one surgeon to another hopelessly untill the Almighty surgeon and healer healed my baby who had endless complications at birth. All I say is hold on. Do not give up, the Lord is in the midst of his believers. Faith heals. There will be times when you despair and feel the cross is too heavy to bear, then remember that you are the chosen one. And that your Saviour watches over you and your baby. Pray unceasingly to your heavenly Father. Let your life be a prayer.
Comment by Reneeta — 5 October, 2007 @ 7:50 pm